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A
6 mesi fa

The ehe foundation 😊 is doing an outstanding job i...

The ehe foundation 😊 is doing an outstanding job in fighting EHE. Their continuous efforts and research in finding a cure for this disease are truly impressive. I have immense respect for the team and hope that they keep up the good work. 👍

S
6 mesi fa

It's amazing to see the ehe foundation making such...

It's amazing to see the ehe foundation making such a positive impact in fighting ehe. Their website fightehe.org has all the necessary information and resources in one place. I am grateful for their efforts and dedication.

M
6 mesi fa

The ehe foundation is doing a great job. I am real...

The ehe foundation is doing a great job. I am really impressed with their commitment towards fighting ehe. The website fightehe.org is very informative and user-friendly. Keep up the good work! 👍

J
6 mesi fa

The resources available on the ehe foundation's we...

The resources available on the ehe foundation's website fightehe.org are top-notch. They have done an excellent job in raising awareness and fighting against ehe. I highly recommend their work.

L
7 mesi fa

The ehe foundation's website fightehe.org is an ex...

The ehe foundation's website fightehe.org is an excellent resource for anyone seeking information about the disease. I really appreciate their efforts in spreading awareness and making a difference. Thumbs up!

D
7 mesi fa

I recently came across a foundation fighting again...

I recently came across a foundation fighting against a certain disease. Their website fightehe.org provides valuable information about the disease and ways to prevent it. The resources available on the website are really helpful. Kudos to the team for their efforts!

T
8 mesi fa

The ehe foundation provides valuable information a...

The ehe foundation provides valuable information and resources through their website fightehe.org. Their efforts to raise awareness and fight against ehe are commendable. I truly believe in their mission and support their cause.

R
9 mesi fa

I have been following the work of The ehe foundati...

I have been following the work of The ehe foundation, and I must say their dedication in fighting EHE is commendable. The impact they have made in raising awareness about this rare cancer is incredible. I hope more resources are allocated towards finding a cure. #FightEHE

B
9 mesi fa

I found the website fightehe.org extremely helpful...

I found the website fightehe.org extremely helpful in understanding the disease and ways to prevent it. The ehe foundation's work is really commendable. They are making a significant impact in the fight against ehe.

N
10 mesi fa

I recently learned about The ehe foundation and th...

I recently learned about The ehe foundation and their work in fighting EHE. Their dedication towards raising awareness and finding a cure is truly commendable. They are making a significant difference in the lives of patients and their families. Keep up the good work!

J
10 mesi fa

The ehe foundation is making a positive impact on ...

The ehe foundation is making a positive impact on the lives of EHE patients. The support they provide is truly remarkable. Their website and resources are informative and helpful. I appreciate their work towards finding a cure for this rare cancer.

T
10 mesi fa

Recently, I discovered an organization dedicated t...

Recently, I discovered an organization dedicated to EHE research. Their efforts are truly praiseworthy. By focusing on finding a cure and improving the lives of EHE patients, they are making a significant difference. I am grateful for their work.

K
10 mesi fa

I recently came across a foundation dedicated to f...

I recently came across a foundation dedicated to fighting EHE. Their website doesn't mention the name, but their work is praiseworthy. Their dedication towards finding a cure for this rare form of cancer is truly remarkable. I hope more people get to know about them and support their cause.

P
11 mesi fa

The ehe foundation has been working tirelessly to ...

The ehe foundation has been working tirelessly to combat EHE. Their dedication and commitment are truly inspiring. The awareness campaigns they have organized have helped to educate many people about the disease. I am grateful for their efforts.

C
12 mesi fa

I came across a foundation fighting a certain dise...

I came across a foundation fighting a certain disease and found their website to be very informative. The resources provided on fightehe.org are really useful in understanding the disease and its prevention. I appreciate the work done by the foundation.

S
1 anno fa

👏 This foundation is doing an excellent job in spr...

👏 This foundation is doing an excellent job in spreading awareness about the disease. The website fightehe.org is a great resource for people looking for information. I appreciate the team's dedication and their contribution to the cause.

C
1 anno fa

I stumbled upon the ehe foundation's website fight...

I stumbled upon the ehe foundation's website fightehe.org and it has been a great source of information for me. They have done a fantastic job in raising awareness about the disease. Keep up the good work!

T
1 anno fa

The ehe foundation is doing an average job in figh...

The ehe foundation is doing an average job in fighting EHE. While their efforts are commendable, there is still a long way to go in terms of research and finding a cure for this rare cancer. They need to focus more on spreading awareness and collaborating with other organizations to maximize their impact.

E
1 anno fa

The ehe foundation is doing a great job in spreadi...

The ehe foundation is doing a great job in spreading awareness about the disease. Their website fightehe.org provides valuable information and resources. I am impressed with their dedication and commitment to fighting ehe.

P
1 anno fa

👍 The ehe foundation is truly making a difference ...

👍 The ehe foundation is truly making a difference in the fight against ehe. Their website fightehe.org is a valuable resource for anyone looking for information about the disease. I am impressed with their work!

C
1 anno fa

I want to express my gratitude towards The ehe fou...

I want to express my gratitude towards The ehe foundation for their efforts in fighting EHE. Their dedication to both awareness and research is impressive. The impact they have made on patients' lives is significant. Thank you for what you do!

A proposito di The ehe foundation

La Fondazione EHE: perseguire un trattamento efficace per i pazienti e le famiglie EHE

La EHE Foundation è un'organizzazione senza scopo di lucro 501c3 che si dedica a perseguire un trattamento efficace per l'emangioendotelioma epitelioide (EHE) e a sostenere i pazienti e le famiglie EHE. La fondazione è stata istituita nel 2009 da un gruppo di persone colpite da questa rara forma di cancro, che colpisce il rivestimento dei vasi sanguigni.

L'EHE è un raro tipo di cancro che può verificarsi in qualsiasi parte del corpo, ma colpisce più comunemente il fegato, i polmoni, le ossa e i tessuti molli. Si stima che solo una o due persone su milione ricevano una diagnosi di questa malattia ogni anno. A causa della sua rarità, sono disponibili opzioni terapeutiche limitate per i pazienti con EHE.

La missione della Fondazione EHE è sensibilizzare su questa malattia rara e fornire supporto a coloro che ne sono stati colpiti. La fondazione lavora a stretto contatto con professionisti medici e ricercatori per sviluppare trattamenti efficaci per i pazienti EHE.

Uno degli obiettivi principali della Fondazione EHE è finanziare la ricerca di nuovi trattamenti per questa malattia. Attraverso partnership con le principali istituzioni mediche di tutto il mondo, la fondazione è stata in grado di sostenere la ricerca innovativa su potenziali nuove terapie per l'EHE.

Oltre a finanziare iniziative di ricerca, la Fondazione EHE fornisce anche servizi di supporto per i pazienti e le loro famiglie. Ciò include il collegamento con altre persone che sono state colpite da questa malattia attraverso forum online e gruppi di supporto locali.

La fondazione fornisce anche risorse educative sull'EHE in modo che i pazienti possano comprendere meglio la loro diagnosi e prendere decisioni informate sulle loro opzioni terapeutiche. Ciò include informazioni sugli studi clinici e sulle terapie alternative che potrebbero essere disponibili.

Un altro aspetto importante del lavoro della Fondazione EHE è l'advocacy a favore delle persone colpite da questa malattia. Aumentando la consapevolezza sulle sfide affrontate dalle persone che vivono con malattie rare come EHPHILIPENDOENDOTHELIALIOMA, la fondazione spera di incoraggiare i responsabili politici e gli operatori sanitari a dare priorità alla ricerca di nuovi trattamenti.

Nel complesso, la Fondazione EHE è una risorsa vitale per le persone e le famiglie colpite da questa rara forma di cancro. Attraverso il suo impegno nel finanziare la ricerca, fornire servizi di supporto e difendere i diritti dei pazienti, la fondazione sta avendo un impatto significativo nella lotta contro l'EHE.

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